Wednesday, September 23, 2009

Doctor anyone?

Today was Avery's appt with the pediatric endocrinologist. It went really well and we have a ton of information. First I have to brag about how much smoother things went at the TTU MOP today. I was a little worried when I found out that is where the appt was following our last encounter there was for the ENT that was miserable! We got there, they had everything streamlined. The nurse met us and she was wonderful, she talked Avery through everything she did and really went out of her way to make all of us comfortable. The rooms had Disney movies playing for the kiddos (and parents) while waiting and it made the short wait go by even faster.

Dr. Dremaine was also wonderful. She actually took the time to talk with us and explain everything. She made sure any questions we had were answered and she even took time to walk us to the front check out and try and get us an earlier appt for Avery's follow up testing. She explained the follow up testing, what they were going to be looking for, what they were going to do, everything. She gave us a prescription for a hormone that we had to go and pick up to bring with us to the testing on Friday. We have a new insurance that I know NOTHING about and she took the time to give me her personal cell phone and told me to call her if the insurance company wouldn't cover the medication.


So we go back on Friday for more testing. Avery gets to go through the night like normal (thank goodness) She will have to get up a little earlier on Friday but she gets to eat breakfast. Then we have to be back at the hospital at 8am to start her testing. They will do inital blood and urine tests then the pain starts....no more water! This is going to be really tough on all of us, but we are hoping since she's so little that it will show quickly in her labwork any changes. Dr. Dremaine said what we are looking for is no change in her output even though she has stopped drinking, ultimately this would make her dehydrate. At that point they will give her the medication and keep fingers crossed that it works and makes her stop going potty all the time. That would be the best case scenario because that means she does have diabetes insipidus and it's the type that can be managed with medication.


If it does work like Dr. Dremaine thinks it will then Avery will have to have a MRI to see what has caused this. What is known is there is some kind of damage to the pituitary glad but the question is what kind of damage. The one concern Dr. Dremaine has is why did this on set so fast and sudden but that is all to be determined.


So what does all of this mean???? More wait and see....at least until Friday!!!


And just for fun....a picture of Miss Priss today!

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